What we do

Cauda Equina Champions Charity is a patient led organisation that aims to raise awareness of cauda equina syndrome, support those living with the condition and provide bespoke, tailor made services for service users and their loved ones.

Our Aims

To reduce trauma and isolation after diagnosis
Promote positive recoveries
To enable best patient outcomes
To ensure that every case of cauda equina syndrome is recorded making accurate data is available concerning incidence and long term outcomes
Facilitate the seamless triage of patients throughout their cauda equina experience
To reduce delayed treatment and unnecessary suffering

Latest

JMW Solicitors LLP

JMW Solicitors specialise in helping patients who have been injured by poor medical treatment of cauda equina syndrome to challenge the mistakes that were made and secure the compensation needed to cope with their disabilities.
Irwin Mitchell

As the largest, dedicated medical negligence law firm in the UK we understand that cauda equina syndrome is a serious condition that has to be treated quickly and correctly.
Champions Coffee & Conversation: Nottingham

Come along to our Champions Coffee & Conversation support group meeting on the 29th June. Meet new friends and discuss CES over a coffee.
Resources

Cauda Equina Aftercare Essentials Guide

Tegan's story - Living with a parent with a disability

Tegan is 15 years old, when she was 13 her Mum was diagnosed with Cauda Equina Syndrome. Tegan tells her story on what it's like living with a parent with a disability and offers advice to other children in the same situation.
CES made simple

Cauda Equina is taken from the Latin name and means "Horse's tail". The name describes the bundle of nerves roots that emerge from the end of the spinal cord, resembling a horse's tail. These nerve roots serve the bladder, bowels, sexual function and lower limbs. The syndrome occurs when the nerves are compressed and cause a set of symptoms called "The Red Flags".
Our services

Cauda Equina Champions Charity offer a range of bespoke, tailor made services for people who have had a cauda equina syndrome diagnosis to help them adjust to a new way of life and live their best lives. These include support group meetings, a helpline 03335 777113, peer support services, information, education and well being services.
Storm Keating - Charity Ambassador

We are extremely proud to announce Storm Keating has joined Champions Charity as our second celebrity Ambassador.
Duncan James - Charity Ambassador

Duncan James, member of British boy band "Blue", actor and theatre star has become the charities first ever Ambassador. As a former Cauda Equina patient, the charity is very close to Duncan's heart. He is passionate about helping people affected by this condition.
Our team

Our team is made up of former cauda equina patients and healthcare professionals who are passionate about changing the CES landscape. We are always available to help and support anyone affected by cauda equina syndrome.
What we do

As a patient led charity "Cauda Equina Champions" strive to raise awareness of all issues surrounding the condition. We provide education and support to service users, their loved ones and healthcare professionals.
Become a member of our Facebook support group

Become a member of our Facebook group and connect with over 2,500 people around the world who live with CES
The difference we make

We campaign in many different ways to raise the profile of Cauda Equina Syndrome. Our members have secured coverage in the press and we were successful in getting cauda equina syndrome on to BBC News recently
Psychosexual Therapy Service

Champions Charity are extremely proud to announce our new Psychosexual Therapy service for people experiencing sexual dysfunction following a cauda equina injury.