Looking back on an incredible anniversary year during CES Awareness Week

Looking back on an incredible anniversary year during CES Awareness Week

CES Awareness Week (29th September – 3rd October) gives us a chance to look back on our amazing 10th anniversary year.

A decade ago we were a small group that wanted to make a difference and now we are a community of more than 4000 people that live with CES, or love someone that does.

We’ll be marking CES Awareness Week with a special CES Workshop in Birmingham on October 2nd, where guest speakers will talk about subjects including mental health, bladder and bowel issues, pain management and much more.

The event, which is the second one this year, is fully booked but don’t worry, we will be sharing content throughout the day so you won’t miss out!

Additionally, we’ve launched the first ever Easy Read CES Red flag leaflet, which was developed in partnership with People First Keighley and Craven and is available to download here.

Earlier in the year our first book – The Lost Tribe, which is about survivors of CES, was published and we’ve alreasy sold over £500 copies, raising more than £3000. If you haven’t got your copy yet please click here: https://amzn.eu/d/58ov8ho

Last, but certainly not least, our anniversary year saw the implementation of a new national pathway to help clinicians better diagnose and care for patients with suspected CES, which is available from NHS England’s Getting It Right First Time (GIRFT) team.

The pathway is co-badged by 11 professional bodies and patient groups, including us here at the Cauda Equina Champions Charity.

We also wanted to take the opportunity during CES Awareness Week to thank every single person and organisation that has played a part in our journey over the last 10 years. We would not be here without you and together we have made a difference to the lives of a lot of people.

If you want to be part of our next 10 years and beyond don’t hesitate to get in touch or make a donation, no matter how small, at https://www.championscharity.org.uk/donate/

Find out more about events and advice from our supporters