The difference we make The difference we make We work tirelessly to raise the profile of cauda equina syndrome so that everyone knows what it is. Our members share their stories in the press, we work on social media and deliver presentations about the Red Flags. Our Patient Participation group gets involved with medical research and we are always thinking of new ways to engage with the wider public. In August last year we were so excited to finally get the support we needed to get national coverage. Our members worked alongside Clive Coleman and his team, to create a very powerful story for BBC News. Following this we were inundated with enquiries from people who had been living with CES and had never met anyone else with the condition. Many nurses and healthcare practitioners got in touch too asking how they could support us moving forward. Since then we have never looked back and are looking forward to our next exciting projects. We couldn't do any of this without our members. We understand it isn't easy to share your CES journey and we will always be grateful to our members who took part for their bravery and commitment, in helping us to make this happen. Follow the links to read their stories - Steven in The Blackpool Gazette Vicky's story in the South Wales Argus Claire's story in the Northern Echo One of our members Catrina Farnell has written an amazing poem about living with CES and the difficulties faced with this invisible disability, watch it here Catrina has now opened her own online shop - Be Kind Store She works from home and tries to bring a smile to everyone she meets!