Get involved Become a member Become a member of our Facebook support group We host our online support group on Facebook and you can request to join here - Online CES Support Group Many people contact us and tell us they have never met or spoken to another person with cauda equina syndrome. They may have been struggling alone for many years unaware of the support we offer. We are often told that by simply being able to share their experiences with others who truly understand can make all the difference. A common theme we hear is "finally I can talk to people who truly understand, that actually 'get' me.