Storm Keating - Charity Ambassador

We are extremely proud to announce Storm Keating has joined Champions Charity as our second celebrity Ambassador. Read more

Duncan James - Charity Ambassador

Duncan James, member of British boy band "Blue", actor and theatre star has become the charities first ever Ambassador. As a former Cauda Equina patient, the charity is very close to Duncan's heart. He is passionate about helping people affected by this condition. Read more

Vicky Main

Vicky Main is Head of Support Services at Cauda Equina Syndrome Association and Cauda Equina Champions Charity. Vicky is a Registered Nurse who lives with cauda equina syndrome and is passionate about raising awareness of the condition and offering support to those living with ces and their families. Read more

Champions Connect Home Delivery Service from Rapidcare

Cauda Equina Champions Charity are proud to announce a new partnership with Rapidcare Home Delivery service. Our bespoke new service enables our members to access an independent home delivery service for all their continence and stoma supplies. We have carefully chosen this family run company to ensure our members get continence support from an independent company ensuring integrity and transparency for our members. Read more

Our services

Cauda Equina Champions Charity offer a range of bespoke, tailor made services for people who have had a cauda equina syndrome diagnosis to help them adjust to a new way of life and live their best lives. These include support group meetings, a helpline 03335 777113, peer support services, information, education and well being services. Read more

Claire Thornber

Claire Thornber is a former cauda equina syndrome patient and advocate for people living with cauda equina syndrome . Claire is the Founder of the Cauda Equina Syndrome Association and Champions Charity. She passionately raises awareness of the condition and lives in Lancashire with her family. Read more

The difference we make

We campaign in many different ways to raise the profile of Cauda Equina Syndrome. Our members have secured coverage in the press and we were successful in getting cauda equina syndrome on to BBC News recently Read more

Training and workshops

Champions Charity aim to provide FREE residential workshops to newly diagnosed service users to help them adjust to a new way of life. We also aim to deliver training to healthcare professionals to raise awareness of CES and the Red Flags as well as the long term effect that CES often has on the lives of patients and their loved ones. Read more

Our History

Cauda Equina Champions Charity officially gained charity status on January 10th 2020. We are proud to be a patient led organisation and staff and volunteers are all people who live with the condition. Read more

Steven Smith

Steven Smith is a former police officer and has been living with Cauda Equina Syndrome for 10 years. Steven is passionate about raising awareness of the condition and offers a unique insight into the male perspective. Read more

Our team

Our team is made up of former cauda equina patients and healthcare professionals who are passionate about changing the CES landscape. We are always available to help and support anyone affected by cauda equina syndrome. Read more

Privacy Policy

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Fundraising ideas

There are many ways to fundraise for us..... Read more

Volunteer for us

We are very proud of our volunteers. They get involved in lots of different ways. From contacting new members who need peer support to fundraising and research topics, there are lots of ways to support us! Read more