Storm Keating - Charity Ambassador

We are extremely proud to announce Storm Keating has joined Champions Charity as our second celebrity Ambassador. Read more

Champions Coffee & Conversation: Nottingham

Come along to our Champions Coffee & Conversation support group meeting on the 20th Aug 2021. Meet new friends and discuss CES over a coffee. Read more

Champions Coffee & Conversation: Middlesbrough

Come and join us at The National Trust Ormesby Hall Cafe on the 20th Aug 2021. Meet new friends and discuss CES over coffee. Read more

Duncan James - Charity Ambassador

Duncan James, member of British boy band "Blue", actor and theatre star has become the charities first ever Ambassador. As a former Cauda Equina patient, the charity is very close to Duncan's heart. He is passionate about helping people affected by this condition. Read more

Vicky Main

Vicky Main is Head of Support Services at Cauda Equina Syndrome Association and Cauda Equina Champions Charity. Vicky is a Registered Nurse who lives with cauda equina syndrome and is passionate about raising awareness of the condition and offering support to those living with ces and their families. Read more

Champions Connect Home Delivery Service from Rapidcare

Cauda Equina Champions Charity are proud to announce a new partnership with Rapidcare Home Delivery service. Our bespoke new service enables our members to access an independent home delivery service for all their continence and stoma supplies. We have carefully chosen this family run company to ensure our members get continence support from an independent company ensuring integrity and transparency for our members. Read more

Our services

Cauda Equina Champions Charity offer a range of bespoke, tailor made services for people who have had a cauda equina syndrome diagnosis to help them adjust to a new way of life and live their best lives. These include support group meetings, a helpline 03335 777113, peer support services, information, education and well being services. Read more

Cauda Equina Syndrome Day 1st October 2020

October 1st 2020 marked the first ever Cauda Equina Syndrome Day. We celebrated it with a huge Virtual Support Group meeting and the day was peppered with events covering everything to do with cauda equina syndrome. Read more

Tegan's story - Living with a parent with a disability

Tegan is 15 years old, when she was 13 her Mum was diagnosed with Cauda Equina Syndrome. Tegan tells her story on what it's like living with a parent with a disability and offers advice to other children in the same situation. Read more

A tale of two sisters !

Jo and Liz are two sisters whose lives and relationship has been forever changed by CES. Read their story... Read more

Claire Thornber

Claire Thornber is a former cauda equina syndrome patient and advocate for people living with cauda equina syndrome . Claire is the Founder of the Cauda Equina Syndrome Association and Champions Charity. She passionately raises awareness of the condition and lives in Lancashire with her family. Read more

Stories from our Helpline - James Birthday Fundraiser

James contacted our Helpline two weeks after his CES emergency surgery. He was given our details from the team at his spinal unit. Three weeks later James contacted us again with some amazing news about his birthday fundraiser. Read about the birthday James never expected! Read more

The difference we make

We campaign in many different ways to raise the profile of Cauda Equina Syndrome. Our members have secured coverage in the press and we were successful in getting cauda equina syndrome on to BBC News recently Read more

Training and workshops

Champions Charity aim to provide FREE residential workshops to newly diagnosed service users to help them adjust to a new way of life. We also aim to deliver training to healthcare professionals to raise awareness of CES and the Red Flags as well as the long term effect that CES often has on the lives of patients and their loved ones. Read more